#32, July 3, 2105, Smelling Breakfast

Sitting in bed thinking about what it was like at Kathy's to smell breakfast cooking before I got up—the luxury of someone else doing something warm and delicious while I lay in, snug and still. I never thought that there would ever come a place when I would yearn for that—someone to take care of me in that distant intimacy. Now, if it comes ever again, it will undoubtedly be in some nursing home where I’ll have to share a room with another old lady, undoubtedly someone who snores and farts like an old dog. I like this better, I think.

Today is full of have-tos: cats, breakfast for Dave, Knute, and Bryan (my fault—it’s the only thing I know how to do and Bryan asked for biscuits and gravy), Dave to PT, some kind of supper. As easy as these are, I am not mustering any want-tos.

Instead, these days are perfect—sunny and 70’s. I want to be in this day. Maybe I’ll pick some of the easy blackcaps and make something sweet with them.

Trying to reach for something I want to, not what I have to, and can’t quite get my hand around it. But then, Dave must be sick, Bryan must be alone, Jean must drive to see us, Audrey must wake up without John again. The musts form life, I guess. The wants are only frosting. They’ll make me sick if I have too much.

#31, June 30, 2015, The Breathing

The last day of June. Cool nights, warm days. Gentle. Beautiful.

Just spent a couple of days at Kathy’s in Milwaukee and on the first morning, fell on my knees in gratitude without completely knowing why. But it had something to do with the lifting of illness and of worry and of responsibility while knowing Dave was safe. And as I lay in bed yesterday, listening to him cough—he coughs so much now—I think about how he gets no break from it. I have the physical care of him, but he has the disease. He never gets to take a free, unburdened breath.

This is what I want—to find the beauty among all of this—the promise and the poem. It has to be here somewhere. Breath is not life, but in the breathing, in the beating of our hearts, life rises.

Image: from Motor Impairment

#30, June 25, 2015, Where to Stand

For my own sanity, I have to admit that I am suffering—and not able to appreciate every day the privilege of caring for Dave. There is frustration, too—the disappointment of lost abilities and canceled plans, the contradiction of how he looks and sounds with what he says, the weariness of all that needs to be done.

I am almost always tired. I would like to say that it is not the sacrifice that wearies me, but sometimes it is. Bryan is coming home this weekend so I can go to Milwaukee and that much is good, but there is anxiety in being away, too. 

I want it to be over.

I want him back healthy.

I will not get what I want.

So what is the purpose of this place? I am in school—God’s school. I am learning empathy, obedience, patience, unselfishness. I am learning to seek pleasure in and hope for what is promised rather than what is happening. This is my training. This is my war. I did not earn it, but it is given me for my betterment by God. If I am to succeed, I must find firm purchase in Him alone.